Welcome to Brainwaves NI - Information, Support for children and adults with brain tumours, their families and cares

ABOUT US

Brainwaves NI is a charity dedicated to providing support and information to those people affected by a brain tumour.

As a charity made up of members affected by a brain tumour, we understand the feelings of isolation, fear and confusion that being diagnosed, or living with a brain tumour can bring. We also understand the physical and emotional challenges and the need for appropriate and accurate quality information, support and advice.

Maybe you are just diagnosed and would like further information or support
Maybe you would like to talk to someone who has journeyed along a similar road
Maybe your family member is living with a brain tumour and you would like to be able to support them
Maybe you are caring for a loved one and require support, information or advice

If you would like to speak to someone, please contact our dedicated phone line, 028 9335 3995. Alternatively, you may wish to come to one of our open meetings, the dates of are on the home page.

The Charity receives no statutory grant. Patients and their families run the Charity and maintain and develop the services from donations received from the general public.

SERVICES:

The most important role of the Charity is providing information and support to patients and their families. In summary our services include:

Providing information and signposting to appropriate and accurate quality materials.
Raising awareness of the needs of those just recently diagnosed or living with a brain tumour, and the needs of their families and carers.
Organising and running social activities for members.
Providing financial support, where appropriate.
Making donations towards research.

COMMITTEE MEMBERS:

Maggi Whyte (Chairperson)

Sandra McKillop (Vice Chairperson)

Kate Ferguson (Secretary)

Nathena McCloy (Treasurer)

Tommy Brannigan

Elaine Hayes

Rose Holt

Maureen Kane

Tracy McAuley

Jacqueline McCloy

Kay McKenna

Evelyn McNeice

Ethna O'Kane

Aileen Walker

Pamela Ballantine (Patron of Charity)

COMMITTEE MEMBERS AGREED THE PRIORITIES FOR THE CHARITY. IN 2008-2009, THE CHARITY WILL:

Review and redevelop its website and produce a leaflet to raise awareness of brain tumours in Northern Ireland and highlight the services provided.
Organise and host at least 3 social activities as a way of supporting those members affected by a brain tumour, their families and carers.
Review current publications and produce a glossy information booklet for those affected by a brain tumour.
Sustain the level of fundraising to further develop and expand the range of services.
Continue to build relationships and work in partnership with health care professionals.

ABOUT BRAINWAVES THE CHARITY:

Brainwaves NI was founded in 1994 by Pamela Watson and Billy Ferguson, both brain tumour patients who felt that a charity providing support and services would be of benefit.