Our history
Brainwaves NI was set up in 1992 by patients and carers who recognised the immense need for information and support surrounding brain tumours. The charity received charitable status in 1994.
One of the founding members was Kate Ferguson MBE. Kate became involved after her husband Billy was diagnosed in 1992 with a very rare brain tumour, normally seen in children. Families meeting at the Royal Victoria Hospital soon realised they were facing the same uncertainty with very little information or support.
“We discovered that there was no information or support and, with others, decided that there was a need for a charity to offer this help for patients and their carers.” — Kate Ferguson MBE
Kate’s story
Kate was a member of Brainwaves NI for 25 years and served as Honorary Secretary for more than 20 years. She described the charity’s strength as its foundation in the experience of patients, carers and bereaved families.
That lived experience continues to shape the charity today. An annually elected committee of volunteers works to support people affected by brain tumours, bring families together, raise awareness and fund research.
Our purpose
Support
Provide information, emotional support, social connection and signposting for children and adults affected by brain tumours, and for their families and carers.
Research
Fund research into the causes, treatment and cure of brain tumours, with a strong local partnership at Queen’s University Belfast.