Support – why it’s crucial
Whilst people experiencing other cancers can empathise with a brain tumour patient or carer, it is only other brain tumour patients and carers who understand the unique complexities, consequences and impact that a brain tumour can have.
Whilst other cancer patients may undergo similar treatments – surgery, radiotherapy and chemotherapy – they are not facing the additional battles that a brain tumour patient undergoes.
Due to its location in one of the bodies most critical organs – the control centre for communication, movement and thought – a brain tumour can have an extra debilitating impact.
Patients can experience communication difficulties, speech problems, muddled and confused thought, restricted movement, physical disability or seizures.
Often patients are no longer allowed to drive or face a battle to retain their freedom and the independence that driving can offer.
The most recent UK statistics for patients who can no longer work is shocking – 40% of low grade & 80% of high grade brain tumour patients cannot work because of symptoms.
As it is particularly prevalent in the under 40s – occuring right at the prime of young family life and during those establishing career years – it can have an extra devastating effect on a patients recovery and rehabilitation.
Established 20 years ago to address the void faced by patients and families when a patient leaves hospital, Brainwaves NI have a unique insight and understanding and are here to help.
Whether that is through encouraging you or your carer during your rehabilitation and introducing you to others who have travelled a similar path or through helping you come to terms with the frustrations of an altered lifestyle.